Missouri Medical Rights Workgroup

Meeting Agendas
PowerPoint: The Basics / Video

The American Academy of Developmental Medicine and Dentistry, Spectrum Institute, and the Alternatives to Guardianship Project have convened a workgroup to explore medical decision-making options available to adults with developmental disabilities.

Workgroup participants include a wide range of stakeholders in Missouri, including self advocates and parent advocates, as well as representatives from disability rights advocacy groups, disability services organizations, state and local government agencies, university professors, and professional and trade associations representing the interests of a variety of health care providers.

The workgroup will identify ways in which patients, families, and providers can work together to protect the medical rights of this patient population while also respecting the ethical and legal duties of health care professionals.

References and Resource Materials

Building on a Framework  /  National Core Indicators: Missouri Data

Medical Decision-Making: The Basics       Helen Article: Medical Rights

Helen Feature: The Case of Peter Brumlik            NJ Appeal:  Legal Brief

 Mental Health Access: Consequences Report       Medical Rights: Guidebook

Transitioning to Adulthood: Resources       Decision-Making Options: Bibliography

Disability Discrimination by Medical Providers: Proposed Federal Rule

Helen Article: Dental Ethics and Disability Discrimination

Tips for Health Care Providers